Down Syndrome Test Down Syndrome Test
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Down Syndrome Prenatal Testing Pamphlet, English

Browse the pamphlet page by page, or skip to a specific section:

Who may be helped by this pamphlet

Information on permission to test (informed consent)

What is a “prenatal test” for Down syndrome?

What is Down syndrome?

How will Down syndrome affect my baby?

General facts about people with Down syndrome in the USA

Medical facts about people with Down syndrome in the USA

How will a baby with Down syndrome affect my family?

What resources are there for pregnant women?

What resources are there for people with Down syndrome and their families?

What people are saying

Great job! I really would have been grateful to have been given this when my son was born 2 years ago."


I have worked with individuals with Down syndrome since 1982 as a professional; and my biological son with Down syndrome is now 18 years old. I have NEVER seen a pamphlet like this ANYWHERE."


Thank you very much for taking on this important work, and for making this so comprehensive."


My experience with receiving the Down syndrome diagnosis was harsh and uneducated. It would have been comforting to read this brochure had it been available. Thank you."


Long overdue. Thank you for your efforts."


I have worked in the OB/GYN field for 26 years and have never seen such a well-written, comprehensive pamphlet such as this!"


Very useful information. We definitely want doctors to have all the knowledge they need to support their patients and families."


I wish I had any of this info 9 years ago when I was faced with the possibility of having a child with Down syndrome."


I'm so glad this is being produced. Thank you to everyone who has worked on this pamphlet."


Wonderful pamphlet! I wish I'd received such a thing when I was going through my pregnancy."


Not only is it a great intro for parents, but I like that you give lots of resources for follow-up. Great job!"


Terrific ideas and well connected."


I like the tone and the level of wording. It is not too overwhelming."


LOVE LOVE LOVE this!"


I think this is very well done and an excellent educational piece. Thank you for the effort and energy it undoubtedly took to develop this."


I feel this type of pamphlet will give peace of mind to new and expectant parents."


Thank you very much for taking on this important work, and for making this so comprehensive."


I wish that I had this to read when I had given birth to my daughter rather than being told I am sorry. It is time that people are educated and realize that the world is wide open and full of opportunities for people with Down syndrome and families."


This is marvelous."


I feel this is very balanced and informative."


This is well done. There is definitely a need for more good patient information."


Very good job. ... I feel this gives a realistic look at Down syndrome."


Excellent pamphlet overall. Thank you for all of your hard work."


I just wanted to say that I think it's such a great idea. ... Thanks for all of your work and dedication."

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Disclaimer

The information in this pamphlet is intended to serve only as an educational tool and is accurate to the best of the knowledge of the Global Down Syndrome Foundation and National Down Syndrome Congress. The reader should not rely on this pamphlet as medical advice. The reader is urged to seek competent medical advice from a licensed physician and other medical professionals who are knowledgeable about Down syndrome. The Global Down Syndrome Foundation and National Down Syndrome Congress disclaim any direct, indirect, consequential, special, exemplary, or other damages arising from any person following the information provided in this pamphlet with respect to any diagnosis, treatment, or action. The organizations do not endorse specific products or services, and any implications as such are unintentional.
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