Privacy and Security Policy
How We Collect and Use Information
We collect two types of information: personally identifiable information and non-personally identifiable information. Personally identifiable information is information that identifies you or can be used to identify or contact you (“Personally Identifiable Information”). We also may collect information that by itself typically cannot be used to identify or contact you, such as demographic information (e.g. age, profession or gender), IP addresses, browser types, domain names, and other anonymous statistical data involving the use of our Site (“Non-Personally Identifiable Information”).
Personally Identifiable Information we collect may include your name, email addresses, postal addresses, ZIP code, telephone number, date of birth, gender, age, user name and password, information about your relationship to persons with Down syndrome, such as such persons’ age and grade level, your interest in various offerings and services of the Foundation, and other information either desirable or necessary to provide quality services to our visitors. We may also collect information about you such as your use of the Site and communication preferences.
To the extent we are able to do so, we may link your Non-Personally Identifiable Information with your Personally Identifiable Information. We may also link information collected online with information we collect offline or that is collected online by third parties.
The Foundation and the Congress may use the information collected from you to provide services which you have requested from us. We may also use your personal information to send you targeted messages, publications, news, and information about events and benefits. The Foundation and the Congress may use third-party service providers to send and distribute e-mail and to perform other marketing and support functions. We also may use information we collect from you to improve the content of this Site, to enhance users’ experiences when visiting this Site, and to customize the content and layout of this Site for each individual user.
Sharing of Personal Information
We also may share with third parties aggregated demographic and statistical information that is not personally identifiable.
The Foundation and the Congress also may disclose an individual’s personal information:
to a person who in the reasonable judgment of the Foundation and the Congress is seeking the information as an agent of the individual;
in situations where sharing or disclosing your information is required in order to offer you products or services you desire;
to a third party or parties, where disclosure is required or permitted by law;
to any other entity that acquires all or a portion of our organization by merger, reorganization, operation of law, or a sale of some or all of the Foundation’s and the Congress’ assets.
The Foundation and the Congress may be required to use or disclose your information in connection with a legal action or other proceeding, including without limitation, in response to a court order or a subpoena. We also may disclose such information in response to a law enforcement agency’s request.
Through the Site, the Foundation and the Congress may make available areas that allow for user interaction, including blogs, forums, bulletin board services, chat areas, or other message and communications features. Some of these forums may require registration. Please remember that any information that is disclosed in these areas becomes public information, and you should exercise caution when deciding to disclose your personal information.
The Foundation and the Congress do not knowingly solicit or collect personal information on the Site from children under the age of 13 without prior verifiable parental consent. If the Foundation and the Congress learn that, despite these measures, a child under the age of 13 has submitted personally identifiable information to the Foundation and the Congress through the Site, it will take reasonable measures to delete such information from its records and to not use such information for any purpose (except where necessary to protect the safety of the child or others as required by law).
How We Store Your Information
The Foundation and the Congress are committed to protecting the security of any personal information you provide to us. We maintain commercially reasonable safeguards to maintain the security and privacy of personal information that you provide to us. After you have submitted your information online to the Foundation and the Congress, we recommend that you end your browser session before leaving your computer. In spite of these protections, the Foundation and the Congress cannot guarantee the security of any data submitted over the Internet. After your information reaches the Foundation and the Congress, however, it is stored on servers (or in the case of information received from you in person, in writing or over the phone, in physical storage areas) protected by procedures and technology designed to block reasonably foreseeable intrusions by unauthorized third parties.
Opt-Out From Mailings
From time to time, you may receive periodic mailings, telephone calls or e-mails from the Foundation and the Congress with news or other information on events, products, services, discounts, special promotions, upcoming events or other offers from or on behalf of the Foundation and the Congress. If at any time you wish to stop receiving emails or mailings from the Foundation and the Congress, please send us an email to firstname.lastname@example.org with the phrase “Privacy Opt-out: Mailings” in the subject line, or write to us at the address provided below, and we will remove you from the Foundation’s and the Congress’ mailing list. Alternatively, for e-mail communications, you may opt out of receiving such communications by following the unsubscribe instructions set forth at the bottom of most promotional e-mail messages from the Foundation and the Congress.
by writing to us at:
Global Down Syndrome Foundation
Attn: Director of Website and Information
3300 E. 1st Ave. Suite 390
Denver, CO 80206
Last Updated: Nov. 13, 2012