In our original draft of the pamphlet, there were many organizations listed to help parents navigate resources for newborns and children with Down syndrome.
Our Down syndrome survey results and input from medical professionals underscored the need to abbreviate such resources in the Down Syndrome Prenatal Testing Pamphlet. The concern being such a resource list might overwhelm a pregnant woman and the length of the pamphlet.
However, over time, the Global Down Syndrome Foundation and the National Down Syndrome Congress will provide such resources on the pamphlet website, www.downsyndrometest.org.
If you have suggestions about this website or the pamphlet, please contact us.